Lexys' mother and her teacher say they never heard her complain about her disease, the nearly 50 radiation treatments she endured or the endless stream of doctor's appointments.
"She was always bubbly and courageous," Kerby said.
DIPG is exceedingly rare. Lamp said she knows of only four other cases in Michigan.
Lexys died at home in her mother's arms. She was initially pronounced dead shortly after 2 p.m.
"We were standing there and had hospice and the pastor. I started hysterically crying. I said at that point that I couldn’t live without her," Lamp said.
Suddenly, Lexys started breathing again. The color came back to her face. She had a heartbeat.
The bounce-back was only temporary; she died at 3:30 p.m. But to her mother, it was a comforting sign.
"Lexi always had a way of having the last word at everything, always," Lamp said. "I think that was her way of saying, 'I'm free mommy; I'm OK.'
Here's the GoFundMe link: they are looking for $15,000, and are about 80% of the way there.